My son had 2 seizures and has cafe au lait spots...could this be Neurofibromatosis?

My son had what was diagnosed as a febrile seizure at 4 and at 6 had two seizures within 8 days. Luckily, we were able to get in to see a pediatric neurologist the next week and he was placed on Keppra to prevent more seizures. While at the neurologist, he noticed my son's cafe au lait spots on his arms, chest, and back. I have been worried about these things for years and my son's pediatrician continued to tell me it was nothing to worry about. The neurologist is worried about something called Neurofibromatosis. I've read a little and some of the symptoms do fit. I'm wondering if anyone else has any information or advice on his symptoms and the relation to Neurofibromatosis? What I have read indicates he could have a brain tumor causing the seizures and we are still a little more than a month away from the scheduled MRI and EEG. If this is a tumor, shouldn't the doctors get it taken care of as early as possible? I would sincerely appreciate any information or advice as I am a worried mother ready to get my baby better!